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Diseases, Disorders & Medical Disciplines>Birth Defects & Genetic Diseases
  • Birth Defects & Genetic Diseases

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    Voluntary health organizations active in the prevention or treatment of illnesses or conditions that are hereditary and passed from parent to offspring. Use this code for organizations that focus on a wide variety of genetic disorders or on genetic disorders not specified below.

    Key words: Achronplasia; Alagille Syndrome; Albinism; Amaurotic Familial Idiocy; Bardet-Biedl Syndrome; Birth Defects; Cerebral Palsy; Charcot-Marie Disease; Charcot-Marie-Tooth Disease; Chromosome Disorders; Clubfoot; Coffin-Lowrey Syndrome; Congenital Defects; Cri-du-Chat Syndrome; Crying Cat Syndrome; Cryptorchidism; Cystic Fibrosis; Cytochrome-c Oxidase Deficiency; Dandy-Walker Syndrome; De Lange Syndrome; Developmental Coordination Disorder; Factor X Deficiency; Fetal Alcohol Syndrome; Fragile X Syndrome; Friedreich Ataxia; Genetic Diseases; Hemophilia; Hereditary Diseases; Huntingtons Disease; Jervell-Lange Nielsen Syndrome; Kartagener Syndrome; Klinefelter Syndrome; Laurence-Moon Syndrome; Leigh Disease; Lesch-Nyhan Syndrome; Littles Disease; Lynch Syndrome; March of Dimes; Marfan Syndrome; Martin-Bell Syndrome; Mental Retardation; Motor Skills Disorder; Neurofibromatosis; Oral-Facial Clefts; Phenylketonuria; PKU; Porphyria; Prader-Willi Syndrome; Pseudoxanthoma Elasticum; Pyruvate Carboxylase Deficiency Disease; Pyruvate Dehydrogenase Complex Deficiency Disease; Rett Disorder; Rett Syndrome; Retts Disorder; Retts Syndrome; Rett's Disorder; Rett's Syndrome; Rh Disease; Romano-Ward Syndrome; Rubinstein-Taybi Syndrome; Sickle Cell; Spina Bifida; Sudden Infant Death; Tay Sachs; Testicular Feminization Syndrome; Thalassemia; Turner Syndrome; Turners Syndrome; WAGR Syndrome; Werner Syndrome; Williams Syndrome; Xeroderma Pigmentosum

    Scope notes: Voluntary Health Agencies provide patient assistance and family support, community services, public and professional education, medical research support, and health-related advocacy.

    USE E86 Patient & Family Support for disease-specific organizations that provide only patient & family support.

    USE N20 Camps for organizations that provide camping opportunities targeting ill children and youth.

    USE the P80 Services to Promote the Independence of Specific Populations for organizations that provide social services for patients and family of people with health conditions.


MARCH OF DIMES FOUNDATION
EIN: 131846366
Assets: 246.3 million
Revenue:156.2 million
Contact: DAVID HORNE
1275 MAMARONECK AVE
WHITE PLAINS , NY

Assets: 241 million
Revenue:216.3 million
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6931 ARLINGTON ROAD
BETHESDA , MD

Assets: 110.2 million
Revenue:55.7 million
Contact: FINANCE DEPT
330 W 34TH ST FL 15
NEW YORK , NY

Assets: 105.7 million
Revenue:67.6 million
Contact:
80 MAIDEN LN FL 8
NEW YORK , NY

Assets: 96.2 million
Revenue:61.5 million
Contact:
314 S MANNING BLVD
ALBANY , NY

Assets: 89.6 million
Revenue:112.9 million
Contact:
PO BOX 840
HARRIS , NY

Assets: 77.7 million
Revenue:43.4 million
Contact:
1020 MARY ST
UTICA , NY

Assets: 52.3 million
Revenue:50.3 million
Contact:
250 MARCUS BLVD
HAUPPAUGE , NY

HEMOPHILIA OF GEORGIA INC
EIN: 581175625
Assets: 49.9 million
Revenue:24.4 million
Contact:
8800 ROSWELL RD STE 170
ATLANTA , GA

Assets: 45.3 million
Revenue:248.8 thousand
Contact: KEY BANK NA
911 CENTRAL AVE PMB 142
ALBANY , NY

Assets: 42 million
Revenue:30 million
Contact:
380 WASHINGTON AVE
ROOSEVELT , NY

Assets: 36.1 million
Revenue:22.2 million
Contact:
8115 164TH ST
JAMAICA , NY

Assets: 29.2 million
Revenue:19.3 million
Contact:
220 S ORANGE AVE STE 300
LIVINGSTON , NJ

Assets: 27.8 million
Revenue:19.5 million
Contact:
10 OAK DR ROOSEVELT PK 10A
EDISON , NJ

Assets: 27 million
Revenue:16.6 million
Contact:
4638 CENTRE AVE
PITTSBURGH , PA


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