NonProfitStats Over 1.8 million non-profits

Address, EIN and Contact Information

Employer Identification Number (EIN) 131846366
Assets and Revenue

Asset Amount: $156,180,805(156.2 million)
Income Amount: $246,288,084(246.3 million)
Form 990 Revenue Amount 207.9 million
Organization Information

NTEE Category
  • G20

    Voluntary health organizations active in the prevention or treatment of illnesses or conditions that are hereditary and passed from parent to offspring. Use this code for organizations that focus on a wide variety of genetic disorders or on genetic disorders not specified below.

    Key words: Achronplasia; Alagille Syndrome; Albinism; Amaurotic Familial Idiocy; Bardet-Biedl Syndrome; Birth Defects; Cerebral Palsy; Charcot-Marie Disease; Charcot-Marie-Tooth Disease; Chromosome Disorders; Clubfoot; Coffin-Lowrey Syndrome; Congenital Defects; Cri-du-Chat Syndrome; Crying Cat Syndrome; Cryptorchidism; Cystic Fibrosis; Cytochrome-c Oxidase Deficiency; Dandy-Walker Syndrome; De Lange Syndrome; Developmental Coordination Disorder; Factor X Deficiency; Fetal Alcohol Syndrome; Fragile X Syndrome; Friedreich Ataxia; Genetic Diseases; Hemophilia; Hereditary Diseases; Huntingtons Disease; Jervell-Lange Nielsen Syndrome; Kartagener Syndrome; Klinefelter Syndrome; Laurence-Moon Syndrome; Leigh Disease; Lesch-Nyhan Syndrome; Littles Disease; Lynch Syndrome; March of Dimes; Marfan Syndrome; Martin-Bell Syndrome; Mental Retardation; Motor Skills Disorder; Neurofibromatosis; Oral-Facial Clefts; Phenylketonuria; PKU; Porphyria; Prader-Willi Syndrome; Pseudoxanthoma Elasticum; Pyruvate Carboxylase Deficiency Disease; Pyruvate Dehydrogenase Complex Deficiency Disease; Rett Disorder; Rett Syndrome; Retts Disorder; Retts Syndrome; Rett's Disorder; Rett's Syndrome; Rh Disease; Romano-Ward Syndrome; Rubinstein-Taybi Syndrome; Sickle Cell; Spina Bifida; Sudden Infant Death; Tay Sachs; Testicular Feminization Syndrome; Thalassemia; Turner Syndrome; Turners Syndrome; WAGR Syndrome; Werner Syndrome; Williams Syndrome; Xeroderma Pigmentosum

    Scope notes: Voluntary Health Agencies provide patient assistance and family support, community services, public and professional education, medical research support, and health-related advocacy.

    USE E86 Patient & Family Support for disease-specific organizations that provide only patient & family support.

    USE N20 Camps for organizations that provide camping opportunities targeting ill children and youth.

    USE the P80 Services to Promote the Independence of Specific Populations for organizations that provide social services for patients and family of people with health conditions.

NTEE Category Description Birth Defects & Genetic Diseases
EO Description Charitable Organization
Foundation Description Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi)
Ruling Date 195009
Income Description 50,000,000 to greater
Deductibility Code / Description Contributions are deductible.
Advanced Ruling Expiration Date 0
Exempt Organization Status Code Unconditional Exemption
Tax Period 201112
Income Code 50,000,000 to greater
Asset Code 50,000,000 to greater
PF Filing Requirement Code No 990-PF return
Activity Code 179000000
Organization Description Corporation
Affiliation Code and Details
Affiliation Code 3
Affiliation Title Independent
Affiliation Code Description This code is used if the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
EO Description subsection:3Classicfication code:1:Charitable Organization
Deductibility Status Contributions are deductible.
Foundation Code Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi)
Type of Organization Corporation
Exempt Organization Status Code 1
Filing Requirement Code 990 (all other) or 990EZ return
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